Fibromyalgia, A Book for Telling "Tears Flowing Inside"

Fibromyalgia, A Book for Telling “Tears Flowing Inside”

One day, the diagnosis fell off, violent, fibromyalgia, and at the same time reassuring. For the first time, Jolie Carey felt understood. After years of medical fussing, years of telling us that everything was fine, that it was all in her head, we believed her when she said she was in pain. I wrote a testimonial book.

“No matter how much I think today (…) when I think about fibromyalgia, I wonder when I really got into the disease. Was it when I was a kid, and my body hurt when I did ballet? In a car accident? Did I get hit?” Julie Carey asks in her book:My body is in exile.”

For years, the young woman was a victim of domestic violence. Bruises on body and soul. One day, I managed to leave. It took years to rebuild itself, and then, when it started to get better, the pains came.

“Backache, slapped eyes, handful of chestnuts in the legs”as described.

She says in her book: “Imagine for a moment that you are getting electric shocks in your arms and legs, dull headaches, your eyesight gives way and your vision blurs. Losing your balance, feeling so dizzy that sometimes you have to cling to something, anything so as not to fall (…) (live) nights that are no longer like nights …”

“It’s horrific, but it almost makes sense, Julie explains. When life is better, we release stress, and suddenly we stop being a solid mass of concrete, we feel pain. The body says, I’ve suffered, I need to take care of.” Today, the young woman knows that fibromyalgia often develops on wounds.

For four years, Julie has been suffering without knowing why. His doctor accompanies him but he doesn’t know what’s going on, all the analyzes, all the tests are good. However, Julie is in pain. “The wheelchair is invisible, and so are all my illnesses, but that doesn’t make me any less sick.” she writes.

One day, a rheumatologist ends up putting in the word fibromyalgia. The disease has been recognized by the World Health Organization since 1992. It affects 1.5 million people in France. But there is currently no real cure.

“What is the point of making a diagnosis if nothing behind it happens? The young woman is indignant. Fibromyalgia is a disease and does not have the right to be sick at the same time.

Because Julie has had to stop work and the only things that ease her pain, spa treatments, and appointments with a psychiatrist are not covered. “Life’s little pleasures will come to an end after the few unsubsidized treatments that meager part-time income gives us. Once the savings are spent, access to paid treatments stops, but the pain doesn’t go away. Should the poor benefit from different care from the rich for the same disease?‘ She asks.

“Fibromyalgia is recognised, as is diabetes. But the diabetic is taken care of, ‘Fibromyalgia, they have to deal with it!'” “

Narrating her daily life, the young woman wants to fight the disease and against those who still suspect her suffering. “We are dental arches, facades par excellence. (…) I clenched my teeth several times, drawing smiles to the world around me, but tears were flowing inside.”

“the hardest, she testifies, It is to fight for everything, all the time, to be proud of ourselves when sometimes we can do something we can no longer do, to look around and see that others do not see anything (…). Success.”

At the age of 35, Julie Carey has no intention of letting illness take every place in her life. “I resist, because I want to stay on my feet, even if it hurts and everything costs me, I’m standing on my feet. It’s my way of accepting sickness, giving it the place I ought to give it. But not being a victim of it in my daily life, and thus I don’t have to Until I live my life on my knees.


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